Thursday, September 5, 2013

Decisions

Hi Family & Friends,

Yesterday Mom and I celebrated being in ICU for 8 weeks.  Today we received some daunting news.  Mom will be in the hospital for some time.  They can't really give us a definitive answer, but we are looking at least another month in the hospital before we can go to The Brent House.  We will have to stay at The Brent House for all of the follow up appointments and so they can fine tune the anti-rejection medicine.  That stay is about 4 weeks on average.

Many have asked what exactly is wrong with Mom.  So far her transplant liver is doing well.  It's her lungs, kidneys, and heart that are creating a viscous cycle hindering her recovery.  Right now, I need her lungs to gather their strength back, her kidneys to start working, and her heart to stop playing hopscotch.  We also have to wait for her last incision to close. (It has closed 4cm since I have been here, and we still have 48cm more to go.)

Right now I have quite a few decisions to make, and we all know how much I hate making them!  So, I ask that you will pray for me and my family that we will be able to make the right decisions.

On a lighter note, Mom's nurse washed her hair for the first time since she arrived!  She loved having her washed with her normal shampoo instead of the dry shampoo.  Mom is slowly but surely gaining her physical strength back, and her mind is coming around.  She still has moments of disorientation, but her mind is a lot clearer than it was a month ago.  We have our ups and downs and everyday there is a new challenge presented or a small victory celebrated.

Mom and I appreciate the calls and visits by those who have been in the area.  We love seeing friendly faces and talking with loved ones rather than discussing medical matters.  Thank you for lightening the load of this challenging journey!

Much Love,

Robyn

1 comment:

  1. My heart aches for you and your family. My dad is facing the terminally stages of cancer. Seeing our hero's hurt... well, it sucks. Tell your mom I think of her and her warrior energy often. :-) Peace & love and prayers as we seek the will & comfort of our Father in Heaven.

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